Palliative stage Parkinson's disease: patient and family experiences of health-care services.
Identifieur interne : 001E01 ( Main/Exploration ); précédent : 001E00; suivant : 001E02Palliative stage Parkinson's disease: patient and family experiences of health-care services.
Auteurs : S. Giles [Canada] ; J. MiyasakiSource :
- Palliative medicine [ 1477-030X ] ; 2009.
English descriptors
- KwdEn :
- Adult, Aged, Attitude to Health, Caregivers, Cross-Sectional Studies, Family, Female, Humans, Male, Middle Aged, Palliative Care (psychology), Palliative Care (standards), Parkinson Disease (therapy), Patient Satisfaction, Professional-Family Relations, Professional-Patient Relations, Qualitative Research, Quality of Health Care (standards), Terminal Care (psychology), Terminal Care (standards).
- MESH :
- psychology : Palliative Care, Terminal Care.
- standards : Palliative Care, Quality of Health Care, Terminal Care.
- therapy : Parkinson Disease.
- Adult, Aged, Attitude to Health, Caregivers, Cross-Sectional Studies, Family, Female, Humans, Male, Middle Aged, Patient Satisfaction, Professional-Family Relations, Professional-Patient Relations, Qualitative Research.
Abstract
Little is known about the lived health-care experiences of persons living with palliative stage Parkinson's disease and the family members who care for them. An exploratory phenomenological investigation was adopted to understand participant's lived health-care experiences and the needs flowing from them. Three family groupings participated in semi-structured in-depth interviews. Interpretative phenomenological analysis revealed three main themes: missing information, being on your own, wanting and not wanting to know. Findings support previous research that indicate palliative care needs are not being met in our current health-care model and that palliative care services should be multi-disciplinary team-based in order to provide comprehensive support to patients and families. Based on this current work, we are currently undertaking a comprehensive quantitative-based multi-disciplinary health-care service needs assessment of palliative stage PD patients with the goal to implement expanded services.
DOI: 10.1177/0269216308100773
PubMed: 19098110
Affiliations:
Links toward previous steps (curation, corpus...)
- to stream PubMed, to step Corpus: 000E91
- to stream PubMed, to step Curation: 000E91
- to stream PubMed, to step Checkpoint: 000E91
- to stream Ncbi, to step Merge: 000A04
- to stream Ncbi, to step Curation: 000A04
- to stream Ncbi, to step Checkpoint: 000A04
- to stream Main, to step Merge: 001F49
- to stream Main, to step Curation: 001E01
Le document en format XML
<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Palliative stage Parkinson's disease: patient and family experiences of health-care services.</title><author><name sortKey="Giles, S" sort="Giles, S" uniqKey="Giles S" first="S" last="Giles">S. Giles</name><affiliation wicri:level="1"><nlm:affiliation>Toronto Western Hospital, West Wing, University Health Network, Ontario, Canada. sgilesmsw@sympatico.ca</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Toronto Western Hospital, West Wing, University Health Network, Ontario</wicri:regionArea><wicri:noRegion>Ontario</wicri:noRegion></affiliation></author><author><name sortKey="Miyasaki, J" sort="Miyasaki, J" uniqKey="Miyasaki J" first="J" last="Miyasaki">J. Miyasaki</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2009">2009</date><idno type="RBID">pubmed:19098110</idno><idno type="pmid">19098110</idno><idno type="doi">10.1177/0269216308100773</idno><idno type="wicri:Area/PubMed/Corpus">000E91</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000E91</idno><idno type="wicri:Area/PubMed/Curation">000E91</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000E91</idno><idno type="wicri:Area/PubMed/Checkpoint">000E91</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">000E91</idno><idno type="wicri:Area/Ncbi/Merge">000A04</idno><idno type="wicri:Area/Ncbi/Curation">000A04</idno><idno type="wicri:Area/Ncbi/Checkpoint">000A04</idno><idno type="wicri:Area/Main/Merge">001F49</idno><idno type="wicri:Area/Main/Curation">001E01</idno><idno type="wicri:Area/Main/Exploration">001E01</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Palliative stage Parkinson's disease: patient and family experiences of health-care services.</title><author><name sortKey="Giles, S" sort="Giles, S" uniqKey="Giles S" first="S" last="Giles">S. Giles</name><affiliation wicri:level="1"><nlm:affiliation>Toronto Western Hospital, West Wing, University Health Network, Ontario, Canada. sgilesmsw@sympatico.ca</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Toronto Western Hospital, West Wing, University Health Network, Ontario</wicri:regionArea><wicri:noRegion>Ontario</wicri:noRegion></affiliation></author><author><name sortKey="Miyasaki, J" sort="Miyasaki, J" uniqKey="Miyasaki J" first="J" last="Miyasaki">J. Miyasaki</name></author></analytic><series><title level="j">Palliative medicine</title><idno type="eISSN">1477-030X</idno><imprint><date when="2009" type="published">2009</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult</term><term>Aged</term><term>Attitude to Health</term><term>Caregivers</term><term>Cross-Sectional Studies</term><term>Family</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Palliative Care (psychology)</term><term>Palliative Care (standards)</term><term>Parkinson Disease (therapy)</term><term>Patient Satisfaction</term><term>Professional-Family Relations</term><term>Professional-Patient Relations</term><term>Qualitative Research</term><term>Quality of Health Care (standards)</term><term>Terminal Care (psychology)</term><term>Terminal Care (standards)</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Palliative Care</term><term>Terminal Care</term></keywords><keywords scheme="MESH" qualifier="standards" xml:lang="en"><term>Palliative Care</term><term>Quality of Health Care</term><term>Terminal Care</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Parkinson Disease</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adult</term><term>Aged</term><term>Attitude to Health</term><term>Caregivers</term><term>Cross-Sectional Studies</term><term>Family</term><term>Female</term><term>Humans</term><term>Male</term><term>Middle Aged</term><term>Patient Satisfaction</term><term>Professional-Family Relations</term><term>Professional-Patient Relations</term><term>Qualitative Research</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Little is known about the lived health-care experiences of persons living with palliative stage Parkinson's disease and the family members who care for them. An exploratory phenomenological investigation was adopted to understand participant's lived health-care experiences and the needs flowing from them. Three family groupings participated in semi-structured in-depth interviews. Interpretative phenomenological analysis revealed three main themes: missing information, being on your own, wanting and not wanting to know. Findings support previous research that indicate palliative care needs are not being met in our current health-care model and that palliative care services should be multi-disciplinary team-based in order to provide comprehensive support to patients and families. Based on this current work, we are currently undertaking a comprehensive quantitative-based multi-disciplinary health-care service needs assessment of palliative stage PD patients with the goal to implement expanded services.</div></front></TEI><affiliations><list><country><li>Canada</li></country></list><tree><noCountry><name sortKey="Miyasaki, J" sort="Miyasaki, J" uniqKey="Miyasaki J" first="J" last="Miyasaki">J. Miyasaki</name></noCountry><country name="Canada"><noRegion><name sortKey="Giles, S" sort="Giles, S" uniqKey="Giles S" first="S" last="Giles">S. Giles</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Wicri/Canada/explor/ParkinsonCanadaV1/Data/Main/Exploration
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 001E01 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 001E01 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien
|wiki= Wicri/Canada
|area= ParkinsonCanadaV1
|flux= Main
|étape= Exploration
|type= RBID
|clé= pubmed:19098110
|texte= Palliative stage Parkinson's disease: patient and family experiences of health-care services.
}}
Pour générer des pages wiki
HfdIndexSelect -h $EXPLOR_AREA/Data/Main/Exploration/RBID.i -Sk "pubmed:19098110" \
| HfdSelect -Kh $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd \
| NlmPubMed2Wicri -a ParkinsonCanadaV1
| This area was generated with Dilib version V0.6.29. |  |